A BRIEF OVERVIEW OF QUESTIONNAIRES ASSESSING THE QUALITY OF LIFE OF CHILDREN WITH BRONCHIAL ASTHMA
DOI:
https://doi.org/10.52340/jecm.2022.06.34Ключевые слова:
questionnaires, quality of life, children, bronchial asthmaАннотация
Our aim was to present the Qol Quality of Life Assessment (Qol) tools which are currently used in clinical practice, their role and importance in the classification and management of asthma. We reviewed 6 questionnaires: 1) Child Health Survey for Asthma (CHSA) -Developed by the American Academy of Pediatrics; 2) Child Health Survey for Asthma-Child Version (CHSA-C) -Developed by the American Academy of Pediatrics; 3) Pediatric Asthma Quality of Life Questionnaire (PAQLQ) - Developed by E.F. Juniper; 4) Pediatric Asthma Caregiver Quality of Life Questionnaire (PACQLQ) - Developed by E.F. Juniper; 5) Pictorial Quality of Life Measure for Young Children With Asthma (Pictorial PAQLQ) -Developed by R.S. Everhart and B.H. Fiese; 6) Pediatric Quality of Life Inventory 3.0 Asthma Module (of the Pediatric Quality of Life Inventory) (Developed by J.W. Varni). Assessing health-related quality of life (HRQOL) can provide a significant and more comprehensive assessment of the impact of asthma on a child's quality of life. Its (QoL) study and correct evaluation can be very useful for the proper management and prognosis of asthma. The impact of asthma on quality of life is different in different countries, which is determined by the cultural, social, psychosomatic, nutritional characteristics of the nation, therefore, validation of the instruments for assessing the quality of life of children with asthma in Georgia is necessary and important.
Скачивания
Библиографические ссылки
https://ginasthma.org/gina-reports/, 2020
Asthma—Level 3 cause, 2020. Available at https://www.thelancet.com/pb-assets/Lancet/gbd/summaries/diseases/asthma.pdf
National Center for Disease Control & Public Health, Georgia (NCDC & PH). Statistical Reference 2019
https://www.ncdc.ge/Pages/User/News.aspx?ID=fad4aa1f-2eab-4792-bf4d-5792f58c1782.
Sangnimitchaikul W, Srisatidnarakul B, Ladores S. The Effectiveness of a Family-Based Asthma Self-Management Program in Enhancing the Asthma Health Outcomes in School-Age Children.CompChild Adol. Nurs. 2021.7:1-15
Shaikhan FM, Makhlouf MM. Quality of life among caregivers of asthmatic children attending pulmonology clinics at Hamad General Hospital, Qatar. SAGE Open Med. 2020 Nov 24;8:2050312120973500.;
Matsunaga NY, Gianfrancesco L, Mazzola TN, Oliveira MS, Morcillo AM, Ribeiro MÂGO, Ribeiro JD, Hashimoto S, Toro AADC. Differences between patients who achieved asthma control and those who remain uncontrolled after standardized severe asthma care strategy. J Asthma. 2020 Dec 2:1-13;
Alreshidi NM, Livesley J, Al-Kalaldeh M, Long T. The Impact of a School-based, Nurse-delivered Asthma Health Education Program on Quality of Life, Knowledge, and Attitudes of Saudi Children with Asthma. Compr Child Adolesc Nurs. 2020 Oct 6:1-15.
Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J Behav Med. 2004;27(3):297–318.
Petsios KT, Priftis KN, Hatziagorou E, Tsanakas JN, Antonogeorgos G, Matziou VN. Determinants of quality of life in children with asthma. Pediatr Pulm.2013 Dec;48(12):1171-80.
Forrest CB, Shipman SA, Dougherty D, Miller MR. Outcomes Research in Pediatric Settings: Recent Trends and Future Directions. Pediatrics. 2003;111(1):171–178.
Hsia BC, Singh AK, Njeze O, Cosar E, Mowrey WB, Feldman J, Reznik M, Jariwala SP. Developing and evaluating ASTHMAXcel adventures: A novel gamified mobile application for pediatric patients with asthma. Ann Allergy Asthma Immunol. 2020 Nov;125(5):581-588.;
Davis SR, Peters D, Calvo RA, Sawyer SM, Foster JM, Smith LD. A consumer designed smartphone app for young people with asthma: pilot of engagement and acceptability. J Asthma. 2021 Feb;58(2):253-261
Ungar WJ, Boydell K, Dell S, Feldman BM, Marshall D, Willan A, Wright JG. A parent-child dyad approach to the assessment of health status and health-related quality of life in children with asthma. Pharmacoeconomics. 2012 Aug 1;30(8):697-712
Asmussen L, Olson LM, Grant EN, Fagan J, Weiss KB. Reliability and validity of the Children's Health Survey for Asthma. Pediatrics. 1999 Dec;104(6):e71.
Radecki L, Olson L, Frintner M, and Weiss K. Reliability and Validity of the Children’s Health Survey for Asthma–Child Version. Pediatric Asthma, Allergy & Immunology. 2008 Jun.89-98.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in children with asthma. Qual Life Res 1996;5:35-46.
Juniper EF, Guyatt GH, Feeny DH, Ferrie PJ, Griffith LE, Townsend M. Measuring quality of life in the parents of children with asthma. Quality of Life Research 1996; 5: 27-34.
Everhart RS, Fiese BH. Development and initial validation of a pictorial quality of life measure for young children with asthma. J Pediatr Psychol. 2009 Oct;34(9):966-76.
Varni JW, Burwinkle TM, Rapoff MA, Kamps JL, Olson N. The PedsQL in pediatric asthma: reliability and validity of the Pediatric Quality of Life Inventory generic core scales and asthma module. J BehavMed. 2004; 27(3):297-318.
Roncada C, Mattiello R, Pitrez PM, Sarria EE. Specific instruments to assess quality of life in children and adolescents with asthma. J Pediatr (Rio J). 2013 May-Jun;89(3):217
Загрузки
Опубликован
Как цитировать
Выпуск
Раздел
